My youngest son Justin was born with HypoDysplasia in his Kidneys. Basically this means his kidneys do not function properly..they have only reached the functional level of 25% between the two of those kidneys. Now this has meant since day 1 after his 1st birthday his kidneys have been in decline. The reason this started after his first year is simple..he was born with this condition but as with all babies in the first year of life their system is maturing & growing. So from that day to this we have had constant medical appointments, hospital visits,illness after illness & medications. I could waffle on for days about the endless trials & tribulations we have gone through with him, but I am not really ready to do that nor cry endlessly. At the end of the day, he will need a transplant...but it will not change his nature.
One thing with Kidney Kids is the lack of appetite, they crave salty foods. He has been an extremely fussy eater since he was 1. Most of this is due to his condition the rest is he is a stubborn person. Now mealtimes are a war zone in our house as anyone who has ever shared a meal with us would atest. No amount of ranting & raving can get him to eat meat & vegies...NONE! I have begged, pleaded, bribed,force fed. You name it I have done it all in the aid to get my son to eat so he can grow. Does not happen. He is on a growth hormone every single night...when I nag enough for him to have the needle. I am now at the point that I have had enough! It has taken me 14 years to get there...but there I am. We had a HUGE & I do mean HUGE arguement the other night once again at dinner time. I have not spoken to him since nor has he spoken to me. I no longer angry, just extremely tired of the constant battle with him. Hopefully time will heal this rift we have...dont get me wrong & do not judge me for this...I love my son & would give my life for his, but a parent can only do this for so long before something gives.
Journalling reads:
As much as I love you Justin, you have been the source of my frustration. You know you need to have your medication DAILY yet you still REFUSE to take it unless I hound you constantly. This medication will help you to grow because your kidney condition has stunted your growth
4 comments:
Wow, all I can say is I'm here if you need someone else to talk to.
Don't judge, cause I don't live it,
hope your feeling ok.
And TAG your it, check my blog for the details
Nicxx
stay strong honey, He's probably at that age of rebelion and im sure in time he will realise that he has to do what he has to do to survive, he will also in time to come know that you have only done things in his best interest and because you love him.... {{{big hugs}}},....
Oh sweetie I can only imagine what you are going thru and by no means will I judge you, as a parent we have to go thru so much and sometimes we just need to walk away and take the time to clear our heads, chin up sweetie {{{cyber hugs}}}.
Goodluck for tomorrow though I don't think you will need it
Big Hugs Terri, sorry to hear about yours son's condition and also about the problems you are facing with him now. You are a mum and doing what mums do best, loving their children, don't ever doubt yourself, you are doing a great job!! Thinking of you!!!!
~Hetty~
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