HOME FINALLY!!!

Yep that is right we are home again YAY!!!! We got home Monday evening...late discharge due to Shrimpy aka Justin having some issue walking properly with his stomach causing him some pain. they laid him flat on the exam table to change the dressing on his stomach and he was howling -- I mean bllod curdling howling!!! I was an absolute mess!!! Crying & shaking because he was in such obvious pain and there was nothing I could do to stop it. The nurses were trying to calm us both all to no avail...whilst my son was in that state there was no way I could calm down. They gave him some oxycodeine for the pain which kicked in quickly..he dropped off to sleep & I managed to breathe again. I am telling you ..nobody & I do mean NOBODY should ever have to hear a child in that kind of pain! They found that the cause of the pain was two reasons -- a hugely distended bladder AND because there is no fat on his body & I mean NONE the cuffs on the catheter are just below the skin. We woke him & got him to relieve the bladder -- pain was manageable..YAY!

He is off school this week -- half days next week & then back to hospital for the 3 week block for the dialysis to begin. I am not looking forward to learning it all but it has to be done.



Before I go I want to mention & give thanks to some truly special people in my life.

Eric - What can I say about you? Not enough! Words are never enough to say just what you mean to me and what you have done for me. You have been there to support me every single step of the way...holding me up with your loving caring nature & you are someone I will never be without in my life. Love ya baby.

Fran -- You my girl are truly my soul mate! You understand & KNOW me so well that at times it scares me...yet comforts me as well. You have also held me up through out not just this with Shrimpy but for a very long time....always walking beside me -- making me laugh,cry & learn to be me. Love ya sweets.

Kass - MY GOD GIRL! You have been a source of strength & delight. You made me laugh when I desperately needed too -- held my hand (literally) when I needed it most. Nurtured my spirit by just being there and life would not be the same without you in it. Love ya darlin.

Yes I have singled out these 3 amazing people -- without them over the last week I would surely be a mess... but they all saw to it that I was loved,cared for & supported every minute of every day.

Bek being a goof!!! OMG! Life is never dull with this angel in my life...im blessed to call her not just daughter but friend.

Til next time.

*hugs n loves*